Category Archives: Dementia/Deterioration of the Mind

The Falsifying of the Researches on Alzheimer’s Disease, Caused the Problems in Researching & Developments of the New Medications

Because we all want that pretty cover, and if the cover ain’t pretty enough, then, we, FALSIFY the results to make it look pretty!  The ETHICS of research, and not only that, this involves the lives of those with Alzheimer’s too!  Off of the Front Page Sections, translated…

The international scientific journal, “Science” recently disclosed, that the key article on Alzheimer’s by the neurologist, Sylvain Lesné of University of Minnesota  on the international journal, “Nature” had been, falsified.  The experts stated, that if the article had been proven to be, false, it may not be effecting the direction of research of Alzheimer’s, but the allocation of the resources in the research of Alzheimer’s may have been miss-placed, causing the waste of funding to the research.

The Taiwanese Researchers of Related Studies are Also Found to Have Been Falsified

This incident was also found in relation to the drug development company in U.S. Cassava Science, that’s worked long-term with a Taiwanese scholar, Wang from NYU, in the related new medication, Simulfilam, the researches are also found to have the falsified data too, and the already published articles by this particular individual was retracted by the scientific journals, and the company is currently under investigation of the SEC and the department of public health, and the university is also investigating the researcher.

“If the thesis had been proven to be false, then, the origins of research on Alzheimer’s had been wrong”, Hu told, the resource allocation that was placed after this may have been wasted completely, that the researchers would have to set a brand new direction, and this would greatly impact the development of the drugs to treat Alzheimer’s for sure.

And so, this just showed, how sometimes, these R&D of the drug companies, in order to get the results to match the requirements, they’d, falsified the research, and this not just only affected the drugs that may need to get taken off the markets, but also, it’d, screwed up the entire direction which the researches on Alzheimer’s had been, based off of, and what have we been medication our elders with Alzheimer’s for the past decade or so, if the results of these important researchers had been, falsified???  Yeah, no wonder, their rates of deterioration is still quick, and not slowed down at all.

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Filed under Bad Behaviors, Cost of Living, Dementia/Deterioration of the Mind, Immoral Behaviors, Issues of Morality, Messed Up Values, Moral Responsibilities, Social Issues, White Picket Fence

The Young Memory House, “Can’t Keep Our Memories Intact, But Can Keep the Love Flowing”

A place that’s set up, to offer the help, the support that these families with patients of early onset dementia needed, and it also, allow these patients with early onset dementia, to keep on contributing in their own means, their own, ways too, off of the Newspapers, translated…

The Stories of the Lives of Those Diagnosed with Early Onset Dementia

The day I’d arrived at Young Coffee, the servers were Chiu and Wu.

Chiu was interactive with the customers, “First time here?  Do you like it here?” as the servers delivered the coffees, he saw the reporter flipping through the stories of the lives of the early-onset dementia patients, he’d gotten activated, “I’d made one too, let me show you!”, and, as I’d turned, I saw the report on the T.V. wall, on how the early onset dementia patient, forgetting what he was gong to do.

Twelve years ago, the fifty-three-year-old owner of the transportation business, Meng fell into a coma from arrhythmia, and days afterwards when he woke back up, he couldn’t, recognize his own wife, Chuang, forgotten how to write, bathe himself, putting his clothes on, his wife thought that this was the side effect from his stroke, and he’d gone into physical therapy for a whole year, but, no improvements, that’s when his wife took him to the neurologist’s for a test, and, Meng was diagnosed with vascular dementia.

As I was drinking the coffee, the shy Wu came over, and used his salesmanship to sell me some cakes, not really many words, thought for a very long time, then told me, “This tastes amazing!”, and, as everybody started getting the whole sentence to try to figure out what Wu meant, then they’d come to known, that this was Wu’s bakery, “The Sweet Memories Bakeries” pound cakes, that’s sold here only on the weekends.

The Fifty-Two-Year-Old Husband Had Dementia, Causing the Whole Family to Fall into State of Panic

When Wu was fifty-two, he had a stroke, which caused his dementia, the day he was formally diagnosed, his wife, Chen and he held each other at the hospital and cried hard.  Wu due to his condition, could not work, and had needed to be taken care of around-the-clock, and needed to take the classes to help slow down the progression, his wife, Hsin-Yi had to keep the household economics, she’d stayed on working, and placed her husband into the daycare programs. Zheng-Bang worked hard for several days, placed himself in the seventy, eighty year old elders, did the physical therapy exercises with them, do the activities of singing, art, being younger, with a good physical health, he’d had a future of work ahead of him, it’d made him feel embarrassed, and refused to go to the daycare center again.

the photo of the cafe

from online, operating every Saturday from 10 to 4p.m

Hsin-Yi found, that the activities are all designed for the elderly population, that there’s a different set of challenges for the families, the patients of early onset dementia.  She’d looked for a very long time, and found Young Coffee, my first call was with “Huei-Jen, we’d talked for two hours straight, it was like I’d finally found that piece of wood in the vastness, that someone finally, understood me.”  Chen’s panic, loneliness, and feeling lost, is common to the loved ones with early onset dementia.

There’s No SOP, Only Learning as They Go

“The early onset is quite different than the elderly dementia, as the elders become demented, they were already dependents of the families, are in need of care.  The younger type would feel, that they needed to find work!  They are faced with loss of job, family conflicts, and other problems relating to these, the education of their young, as well as the caretaking of their, aging parents too!”, the assistant secretary of the Alzheimer’s Foundation, Lee is the driftwood that offered the chances of not drowning to Chen on the other end of the line.

Lee worked with the cases of early-onset dementia patients for many years, is the families’ go-to-person, she’d told, that there are, too many different and complex situations with the early onset cases, there’s no standard means of handling the cases, to even now, she’s still, learning as she goes.

For instance, a few years back, the foundation received a call, a woman who held a higher up position in a firm in her fifties, she was in the beginning stages, single parent, raising a child of only a little older than three, her parents are gone, with no one else she can rely on, she’d come to inquire, what arrangements she can make for her own child.  A year and a half later, the woman deteriorated to the point of not being able to live on her own, the foundation accompanied her to the treatment sessions, helped her retire successfully, found a facility for her, and filed for the adoption papers for her child, each problem came too quickly, “there are a lot of case like this one, before you can think about what to do, you are, forced, to make the choices!”

The Youngest Worker is Forty-Five, with the Café as His Driftwood that Helped Him Stay with Head Above Water

In Young Coffee, everyone has a bitter story.  Currently, the youngest is a man born in 1977, as another individual was diagnosed, he just had twins.  And, for some, because formal diagnosis was hard to get, the individual was labeled as mentally ill, lazy, irresponsible, forced out of their work, gotten divorced from their spouses.

the early onset individuals mixing the dough to make the cookies…photo from online

And so, Young Coffee is a café from the outside looking in, but, it’s actually, a place where the families and the early onset patients’ place to go to learn, and to breathe in, also, a base for the foundation to help the families of these early onset dementia patients.

“Shen-Jen no longer recognized me, he can’t take care of his own needs anymore”, Liu, is also a family member of an early onset dementia patient, her husband, Lin was diagnosed at age fifty-four, in the beginning stages, he’d worked at Young Coffee, taken the classes too, but, dementia is like a long goodbye, no matter how attentive Liu took care of her husband, how much she’d put her mind into caring for him, it still, can’t defy the scripts of life that dementia had written down for her husband.  And even as she’d known how it would end, his wife, Feng-Lien told, that there’s still the heartaches, the losses that come with it.

But, it’s not all loss.  When Liu was younger, she sustained a brain injury, lost all the physical abilities of her body, as a registered handicap person, Liu had always been the cared for in her life, but she’d become stronger, with her husband’s early onset dementia, and became, a caretaker, even now, as her husband is of severe dementia, Liu still spoke for the early onset dementia individuals, fought hard for more resources for them, to get a facility set up to take care of all the early onset dementia patients, she said, all of these resources, her husband is no longer in need of, but they can help the families like them, who are in the same situations, to find that driftwoods, so they can all, float back to shore, without drowning.

with a professional leading the patients of early onset to do some physical activities…photo from online

And so, these are, the stories, of the families of the early onset dementia patients, and, this is a place, that offers the vocational trainings, the opportunities for work, so these younger generations of dementia patients can still continue working, until they can’t work anymore, and this is also a place, where the families can come together, to find that social support they’re all in need of, in taking care of their loved ones who’d been, diagnosed too.

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A Man a Letter to the President, the Caretaking Groups Begged for the Reliefs, the Lift on the Bans of Gathering to the Government

The families here, with the long-term care needs, with the pressures of caretaking growing greater by the day, they’re all, about, to CRASH, and, this, is their asking of the president here!!!  Off of the Front Page Sections, translated…

A Total of 24,000 Families in Taiwan with Long-Term Care Needs about to CRASH, Chen: We’ll be Discussing Loosening the Procedures of the Matter on Wednesday

Starting in July 13th, the country is loosening the restrictions on lockdown, the command center announced that the facilities can reopen, with the restrictions, but the daycare centers, the Alzheimer’s centers isn’t a part of those, a ton of caretakers screamed out: “We can’t take it anymore!”, the four major caretaking groups started up the “one man one letter to the president” act, hoping, that the ban of the daycare locations can be lifted sooner.  Yesterday, the commanding center stated, that they’re, discussing the loosening of the rules with the experts on Wednesday (the fourteenth).

The Family Caretaker Foundation, the Taiwanese Alzheimer’s Association, the Elderly Welfare League, the Homecare Policy League of Taiwan started up the movement of one-man-one-letter to the president: the families are about to crash, from having the elderly locked in the home!  Open up the daycare locations” movement, stressed that the 547 long-term care 2.0 locations the 494 dementia chapters, had been locked down for close to two months since the outbreak, with the 24,000 families with the needs, about to, crash, and they’d called out to the government, to see it as a huge problem.

before the outbreaks…

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photo from online

The secretary of the Homecare Organization, Chen stated, that the micro reopening, tailored to the other needs of the businesses, but had, forgotten the needs of the group that needed it the most, based off of experiences from other countries, cutting off the services provisions to the Alzheimer’s, the demented population, is a primary factor for domestic violence, and tragedies.

The foundation had been receiving calls for the past two months, every day, with the family members in despair, that’s why they’re, speaking up now, and decided to start up the movement of “a letter a person” to the president, and up to last night, the foundation had received a total of 268 messages, all hoping the government lift up the bans on the service locations soon.

Chen pointed out, that there are, 800,000 families in Taiwan in need of long-term care provisions, with five-percent of them from the lower end of the socioeconomic statuses, most others were of middle class, they believed the government, and utilized the Long-Term Care 2.0 care locations, in the daytime, they’d sent their elders to the locations, and go to work, and now, as the outbreaks occurred, this service was no longer provided, a lot of the individuals had to look after their elderly, and work at the same time, which is too difficult, the pressures from caretaking, plus the pressures of economics, it’s, too cruel for the families.

The secretary of Taiwan Alzheimer’s Foundation, Tang believe, that the elderly with dementia would deteriorate even more quickly, if the government does NOT reopen the service locations.  The locations provided more than 10,000 elders their needed activities, the government needs to encourage the elders to get vaccinated, to reopen the activities centers soon, to give the elders the motivations to get their vaccines.

查看來源圖片
the elderly, being, ever the more, isolated, because they couldn’t go out, interact with others…photo from online

Chen stated, that he’d considered that by the fifteenth, the elderly over sixty-five, who’d been vaccinated, already had the immunities, and so, on the fourteenth, he will be holding a expert discussion on the matter, to discuss how to reopen the activities centers.  He’d stressed, that the elderly are weaker in their immunity against the illnesses, but the caretakers needed to watch out for their own psychological wellbeing too, that the command center already planned, that as the vaccination rates reached a certain point, the daycare centers will be, reopened.

Yeah uh, that’s still, BULLSHIT, from the government, I mean, hello, if you’d provided us with enough vaccines, then, none of us would be locked in now, and now, finally, this group of caretakers of elderly population with Alzheimer’s couldn’t take it anymore, and they’d, told the government their needs, that’s when this head of defense against MERS-CoV came out, and stated some bullshitting FACT we already know, wow, isn’t that, something???

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Filed under "Professional" Opinions, Dementia/Deterioration of the Mind, Government, Policies, & Politics, Life, Old Age, Perspectives, Properties of Life, Right to Life, White Picket Fence

The Love that’s Not Taken Away by Dementia

From the mind of a caretaker, translated…

“Child, let me tell you, that last night, my bedroom was cramped with a ton of people.  And, nobody wanted to believe what I was telling them…”, every time I’d gone to see my father, he’d always pulled me, mysteriously, to the corners of his ward, and told me, he’d looked everywhere, and, there’s this fear, this sense of panic, in his gaze; although, I felt uneasy at the moment, I’d still worked hard, to calm him back down, back then, I had yet to understand what dementia was, and didn’t know, that hallucinations were a symptom of dementia.

What caused me to blame myself for so long was, before my father died, he’d forgotten everybody else but me, but, because I was too young, other than watching him suffer, I didn’t do a thing for him.

Many years later, my father-in-law who’d retired from a teaching post, was originally supposed to be enjoying his retirement, playing with the kids, but, dementia had, crept up on him.  At first, he’d become forgetful, lost his balance, tripped and fell a lot, then, he had difficulties swallowing, to the very end, he’d needed people to help him, with his daily living routines, this, was defeating, for a man who once had the world at his feet, as he stood on the podium, lecturing away; he’d become a balloon, with the air let out, he wasn’t talkative from before, he’d become even more silent now.  My father-in-law also started forgetting his family members one by one, but, he’d always remembered me, his daughter-in-law, and it’d reminded me of my own father, who was tortured by dementia before he died; the difference was, that this time, I’d used my words and actions, to show and tell my father-in-law, “Don’t be afraid, we will keep by your side.”

Dementia is torture for the elder, and, for the caretaker, it’s this sense of helplessness.  Seeing how the ones we loved, with the memories, getting away from them by the day, their souls seemed to have been, locked up, in the depth of the oceans, it’s truly, trying, for both the patients and the families.

For me, my father’s dementia had kept me in regret for a very long time, and so, when I took care of my father-in-law, I’d given the efforts, so I won’t have any regrets again.  In facing dementia, I’d learned to love, to accompany, and to show care and concerns, to keep us all, connected well together, even IF the world changes.  Because of love, we will, NEVER forget.

And so, this woman regretted not being understanding enough toward her own father, and so, she was able to gain that understanding, when her father-in-law became diagnosed too, and, this sort of understanding can only come with experience and aging.

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When Her Body & Mind Became Separated

Another one of those “outerbody experiences”, perhaps???

When her body and mind became separated, it’s like you’re talking AT her, and she’d been on “autopilot mode” of response, with the ability to answer in yes or no, and used only simple words and sentences that don’t make sense to the rest of us.

When her body and mind became separated, what, can we do, to JOLT her mind, BACK into her body?  By SHOCKING her with threats?  But studies showed (don’t ask which ones!!!) that threats is a really BAD way, to get through to someone, isn’t it?  When her body and mind became separated, there’s NOTHING we can do, but to just, wait, anxiously, until she “returns”, and sometimes, it’d be just a few seconds, then, as the day rolls on, the time became longer lasting, and now, she’d drifted for almost fifteen minutes, and, NO matter how hard we SHOOK her, it’s like, she’s O-U-T!

When her body and mind became separated, well, that, is what we have to deal with every single day now, as the progression of her illness goes.  When her body and mind became separated, there’s NOTHING we could do, but to hope, that this current LAPSE of hers will be over………

 

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Filed under Awareness, Being Exposed, Dementia/Deterioration of the Mind, Life, Loss, Old Age, Properties of Life

The Words, Slowly, Vansihed, from Her Mind

As the illness progressed…

The words, slowly, vanished, from her mind, whereas before, she’d get into that fighting, feisty mentality, when she felt challenged by someone, and now, she just sits, staring, into space.

The words, slowly, vanished, from her mind, and, she’d started, having troubles, keeping up with the conversations that were, going around, finding it hard for her, to keep track, to follow, and eventually, she’d stopped, chiming in, or, asking others, what they’re talkin’ about…

The words, slowly, vanished, from her mind, and, as the day passed, she’d become, more, and more withdrawn, and, she’d turned into, a prisoner, of the confines, of her own mind, and, although she’s the one with the key to unlock, gosh!  She’d forgotten where the key was!

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Filed under Awareness, Being Alone, Cost of Living, Dementia/Deterioration of the Mind, Despair, Loss, Observations, Old Age

The Day You Became a Stranger to Me…

We’re, going down, this slippery slope, and we both knew, that this, will NOT end well, at A-L-L!!!

The day you became a stranger to me, but how, we were related, a very long time ago, I suppose, and now, I don’t even recognize your face at all, I see you, as a foreigner in my world, a complete stranger…

The day you became a stranger to me, it’d hurt, and this day had, eventually come, for your condition had worsened, to the point, that you can’t even recognize that that’s you, reflected, in that dresser mirror anymore.

The day you became a stranger to me, who are you, what are you doing in my house?  HELP!  INTRUDER!!!  The day you became a stranger to me, that, is the day, I hoped that I could die, but, I’m still here, for some unknown reasons…

The day you became a stranger to me, there’s NO way ‘round it, because with the deteriorations of your mind, you’d stared at that blank wall more and more, and although I’d still come visit you three, four time a week, but, we’re rarely, interacted with one another anymore.

The day you became a stranger to me, I had never seen you before!  Who are you?  And, why do I have a ring, on my ring finger, I’m not married, I’m only ten years old!

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The Sense of Helplessness that Accompanies Me, in Caring for You

Been feeling it, quite a lot lately, actually, with the progression of your dementia, we’d placed you on meds, took you to a TON of supposedly-helpful classes, and now, they’re kicking you out, because you’d become, disruptive to others, and couldn’t concentrate for a long time…

The sense of helplessness that accompanies me, in caring for you, nobody can and will EVER understand, for I’m one, fighting, this war that I know I can’t EVER win!  But, I keep, fighting on, took you to the doctors, and watched him, wrote out that one MORE prescription slip, for your meds, and, I’d wanted to ask him, is there any way, that I can, slow down the progression, but, the words, got swallowed down, and, it’d tasted bitter, as they, trickled down my throat.

The sense of helplessness that accompanies me, in caring for you, why am I the one, who must handle it all?  When you’d stayed with me, you’d talked of your other kids, as if, I don’t even matter, how, how can you forget me, I am, your caretaker, your other kids are either way too busy, or they don’t want you, only me, I was, the only one who took you in, and this, is how you repay me?

The sense of helplessness that accompanies me, in caring for you, does it ever, go away?  I know I shouldn’t, and I feel, extremely guilty for it, but, why can’t you, just die already?  You’d already, outlived your husband, isn’t that enough???

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Filed under Coping Mechanisms, Cost of Living, Dementia/Deterioration of the Mind, Despair, Life, Moods, Emotions, & Feelings, Properties of Life, Story-Telling, Vicious Cycle

Being the Primary Caretaker of Her Demented Father, “How Could He Forget Me!”

Caretaking of demented elderly, translated…

Patients who are diagnosed with dementia has a declining mental capacity, it’s such a tragic and sad process, and, the decline of mental capacity is not limited to the loss of memories, it’s often accompanied by the ability to make judgments as well as abstract thinking abilities on the decline as well, and, the whole thing combined, turned the matter into scenes after scenes of hard-to-deal with arguments and difficulties in one’s life.

Mr. Wang was diagnosed with Alzheimer’s many years ago, from the very beginning when the symptoms started when he’d started asking his family members the same questions again and again, to his eyes, slowly overcome with that look of helplessness, in the multiple sessions with the doctor, the families were told that this, IS the progression of Alzheimer’s, and, the children could comply with how their father would fall silent from time to time, and get loud every now and then, and they’d returned home to visit with him even more, hoped, to keep the years shared on the increase.

His Youngest Daughter Took Good Care of Him, But, Her Father Had, Forgotten Her

Ms. Wang is the youngest of her family, when her father was diagnosed, she was the one who’s not yet married, their mother died early, so naturally, she’d shouldered up the responsibilities to care for him.  With the worsening of her father’s condition, Ms. Wang took an early retirement from the school she’d taught at, and, helped her father live off of his own savings, as well as her own retirement pensions, the days are hard, and, seeing how her father deteriorated by the day, she’d started fretting.

When Mr. Wang started becoming delusional and started arguing with her, Ms. Wang realized that her father’s conditions had progressed even further.  From time to time, her father would have that doubtful gaze, asked her, “What’s your name?”, she thought, that it was a temporary moment of memory lapse, how could he forget, the daughter who’s by his side for all these years, until the day…

“Dad, wake up for your breakfast!”, as Ms. Wang prepared the meals, and waken her father up for it, her father looked at her, with panic, screamed, “GET AWAY from me!  Why are you in my house!  What do you want from me!”, Ms. Wang was shocked, and had, time and time, told Mr. Wang her name, that she was the daughter he’d lived with every single day now, but, Mr. Wang kept denying her as his daughter, and insisted, that his daughter lives in another city.

As Her Father’s Condition Progressed, She’d Become a Stranger to Him

Ms. Wang called up her older sister, and handed the phone to her father, and her father behaved like a child who was shocked, told her eldest that there was a bad lady that came to his house, and, as he spoke, the tears of panic came to his eyes.  At which time, Ms. Wang could no longer hold it in, started tearing up, by the corner of the walls.

As the eldest sister rushed back home, her father, with that look of panic, hid out in his own bedroom, and, her youngest sister, without ANY facial expressions, sitting in the living room, crying.  Ms. Wang finally cracked, she’d screamed hysterically, “How can he forget me!  I’d given up my job for him, sacrificed my love life, my life, used ALL the energies I have, to care for him, and, all he could remember was, you, the daughter who married far off, are all these years I’d been giving my life for naught now?”

A Slow-Rewind of His Memories, the Hardships Were, Forgotten First

The memories of the demented elderly started getting lost, from the newer ones, so, at first, they’d have troubles, recalling what was just said to them, then, with the progression of the disease, the patients’ memories started to rewind forward.

The earliest memories that one has is the slowest to be gone, and so, Mr. Wang may forget about his youngest daughter, then, his oldest, forgetting about one’s own offspring, before one’s own spouse, and, it’s all because of the difference in the time and accumulation of moments shared.

A lot of the younger and unmarried children became the primary caretakers of demented parents, but, with the progressions of the illness, it’d made the caretaking duties harder to handle, and they’re the very first to get forgotten.  But, the blurring of the demented patients and the simplified logic, a condition that neither parties wanted to have happened occurs.  Other than handling the caretaking duties, one must also have plans for one’s own life, and you must share your thoughts with someone else, so you don’t carry it all on yourselves.

So, from this, you CAN see, how uneven the primary caretaker feels, right?  She’s the one who took her father in, took good care of him, and yet, she’d become a stranger to him, and, this would be hard for this woman to handle because she’d put EVERYTHING into caring for her demented father, and, in the end, he couldn’t even recognize him anymore, but that, is the progression of this illness of old age.

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Turning Your Dementia Against You

I’m, it’s NOT as if you’ll be able to recall what I’d taken from you, so, why not, right???

Turning your dementia against you, that, is what I will BE doing, I mean, I’d already gotten STUCK, taking care of you already, and, what is it, that I’m getting out of the deal again?  Not quite enough, and, my siblings, they rarely come, and, you only remember them, and NOT me, who’s RIGHT beside you, and you still say that you don’t play favorites?  Give ME a break here!

Turning your dementia against you, that, is what I’d done, I mean, why the HELL should I get STUCK, with this job, that NOBODY wanted?  I mean, I might as well, get something FROM you while I can, and besides, what I’d taken is, rightfully MINE, for all those years I’d had to, put up with your demented ways, calling ME by the wrong name, and you’d never even SHOWN, an INKLING of gratitude toward me, for taking care of you, I should’ve STUCK you in that nursing home is the thing!

Turning your dementia against you, there’s NO way you can prevent me from so doing, after all, I’d already been PUT through HELL by you, who’s the one, chasing after you in the middle of the night, when you ran out?  Who’s there, to CLEAN off your soiled sheets when you’d wetted the bed?  Who’s there, to SPOON feed, each and every bite, to make sure that you don’t fall asleep when you are still chewing your food, and then, swallowing me down, it’s all been me, and now, I’ve HAD it.

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Filed under Bad Behaviors, Being Exposed, Dementia/Deterioration of the Mind, Family Matters, Obstacles in a Relationship, Perspectives, Properties of Life, Vicious Cycle